In 1990 a group of men with Prostate Cancer formed a support group now known as "Informed Prostate Cancer Support Group". It was started by 12 cancer survivors with no connection to doctors, hospitals, or clinics. It was their belief that they needed a forum where all ideas of prevention and treatment could be shared and openly discussed without following outdated medical practices. The two co-founders, Mr. Wayne Kenaston, and Dr. Frank Anders, dedicated their lives to researching new treatments and debunking the old. The group meets the third Saturday of each month, 10:00 AM - 12:00 PM at Sanford Burnham Prebys Auditorium, 10905 Road to the Cure, San Diego, CA 92121
We often feature expert speakers to bring us the most current information on research, prevention, and treatment. We have been fortunate to have heard from leading doctors and researchers. Some of our speakers have come from UCSD Departments of Radiology, Urology and Oncology, Prostate Oncology Specialists, Phoenix Molecular Imaging, Genesis Healthcare Partners, California Protons Cancer Treatment Center and Imaging Healthcare Specialists to name a few. Several times a year we have round table meetings where we discuss our own treatments and conditions.
We now have a membership of approximately 850 men from all over San Diego County. We produce a monthly newsletter with our calendar of events, reviews of our speakers, and reviews of books and articles. We email approximately 800 and mail approximately 50. The average attendance at our meetings; is 60-100. However, we have held conferences where we have attracted 200 people.
We have had a definite impact on the community. Our President, Lyle LaRosh, was awarded the National Patients Advocacy Award at the 2009 Prostate Cancer Research Institute annual conference. Director Gene Van Vleet was awarded the same honor at the 2014 Conference.
Because we offer the complete spectrum of information on prevention and treatment, we provide a forum where you can get all your questions answered in one place by men that have lived through the experience. Prostate cancer is very personal. Our goal is to make you more aware of your options before you begin a treatment that has serious side effects that were not properly explained. Impotence, incontinence, and a high rate of reoccurrence are very common side effects and may be for life.